I apologize for the horrible way this post is posting in wordpress right now. It is one jumbled mess. I can’t figure out why.
Facebook Post 1/9/2013
I’ve had many inquiries about how my father is doing and I have been waiting for the ok from my mom to post an update. As you know he had surgery at the end of November to remove a new brain tumor. Within the 19 days from surgery to his post op MRI he has had 3 new tumors grow. Due to how quick the progression was he isn’t a candidate for most Glioblastoma treatments. As a family we have thought and prayed about where we should go from here and all agree that my father would want to stop all treatment and live the rest of his time happy and peaceful. He is in no pain and shouldn’t be. That is one blessing with this type of cancer. We aren’t getting the length of time with him that we all hoped for but are so grateful for the time we have had this past year making wonderful memories and strengthening our bond as a family. My mom has been amazing through all of this with her positive attitude and never ending love for my dad. (There truly are “happily ever afters” in this world. My parents have had one for 45 years.) Please keep my parents in your prayers. We are so thankful for the love and support we have received over the past year. Thank you.
The outpouring of love from our family and friends has been overwhelming. This is one thing about facebook I do like. My mom is glad she doesn’t have to keep telling this information over and over again to everyone. She met with Hospice yesterday and they will start their visits tomorrow. She felt really good about their meeting and got lots of information and questions answered. I will be heading down next week to spend some time with my dad before he gets worse. He is still up and walking around. He still has an appetite and is eating, not a lot though. He doesn’t talk much, but does answer my mom’s questions and will say a few short sentences here and there. Sometimes it is like he is speaking his own language of made up words though I am told. I haven’t talked to him for a few days since it is hard for him to remember who he is talking to on the phone and gets distracted easily. It makes me sad. I have really grown to enjoy our daily calls over the past 10 months.
Today I am home with my sick 5 year old. I took some time and explained death to her and how grandpa was sick and was going to die soon. At first she couldn’t grasp why the doctors couldn’t just go in and fix it. That is what they do when she gets sick. I told her that sometimes things just can’t be fixed. Then I told her about heaven and that so many people were waiting for grandpa and they will be so happy to see him. I reassured her that he wouldn’t be alone or scared and he would be happy to see them too. I have been struggling with this for a few months. How and when to tell her. She understood it better than I thought.
If any of you out there reading this have already gone through this I would love some idea on how the next few weeks/months are going to be. I know every situation is different. I would just like to be aware of the all the possibilities. I have read the web site brainhospice.com and thought it was very informative. Very worth the time to read it. I would be very interested in your experiences too.